Empowering Equity: Tigerlily Foundation’s Fight Against Breast Cancer Disparities
Tigerlily Foundation is committed to advancing public policy to further our mission to educate, advocate for, empower, and support young women before, during, and after cancer. We are striving to make our vision of ending disparities of age, stage, and color in our lifetime a reality through:
We Can HEAL Together:
Legislation & Issues
State Prescription Drug Affordability Boards
Inflation Reduction Act (IRA) Patient Impacts
Policy History
& Impact
Advocacy Tools
and Training
Policy
Events
Tigerlily Foundation has decades of history in the policy landscape. Our goal has always been to advocate for impact by driving policy making to create equity for patients. Patient advocacy leadership has always been key—here within Tigerlily and in guiding public policy. We water the seeds of inspiration and innovation, and working with advocates, advocacy organizations and stakeholders, have created policies and legislation that have changed the lives of millions of people. We are excited to culminate these years of momentum into our Health Equity Advocacy and Leadership (HEAL) Policy Center for Excellence (COE).
Through Tigerlily’s HEAL Policy COE, we work to educate, empower, and lift patient voices to ensure they are amplified, in order to achieve health equity and end disparities. The HEAL Policy COE will focus on systemic changes through policy at the local, state, and federal level to:
- End barriers to accessing and receiving quality, equitable care for all,
- Lead innovation through patient-leadership, and
- Achieve health equity and eliminate disparities in breast cancer.
Through the HEAL Policy COE, we seek to influence policy for these purposes through bi-directional learning, programs, and training to cultivate a center to exchange ideas, activate voices and create lasting change.
To learn more, email HEAL@tigerlilyfoundation.org
Thank You to Our Generous Sponsors
Inspiration Sponsor
Transformational Sponsor
Strength Sponsor
Beauty Sponsor
Let’s connect on social!
19,389
Tigerlily Foundation
Tigerlily Foundation’s mission is to educate, advocate for, empower and support young women before, during and after cancer.
A victory for patient access in Virginia. Thank you, Governor Spanberger.![]()
![]()
When you’ve faced cancer, you learn quickly what truly matters: timely access to the right treatment, in the setting your clinical team recommends. Affordability cannot come at the cost of that access.![]()
![]()
Today, we are deeply grateful to Virginia Governor Abigail Spanberger for vetoing HB483 and SB271, the Prescription Drug Affordability Board (PDAB) / MFN bill. She listened to patients, survivors, and frontline providers—and chose to reject a dangerous experiment that would have put Virginians' lives at risk.![]()
![]()
Earlier this year, our Founder & CEO, Maimah Karmo, a breast cancer survivor, warned in the Richmond Times-Dispatch that this board would not lower costs for patients, could force "medical switching," and would drain state resources without putting a single dollar back into a patient’s pocket.![]()
![]()
When the bill later shifted to incorporate MFN (Most Favored Nation) policies, the risks only grew. As Maimah wrote in a follow-up thought piece, giving a board the power to cap payments without strong safeguards creates devastating new barriers:![]()
![]()
🔹Disrupted care – When reimbursement falls short of drug acquisition costs, community cancer clinics may stop offering life-saving treatments. Patients stable on therapy could be forced to switch for non-medical reasons.![]()
![]()
🔹Delays and uncertainty – Insurers often respond to price caps with stricter prior authorizations, step therapy, and longer drives to find a provider. No patient fighting cancer should face that.![]()
![]()
🔹No proven patient savings – Five out of six payers don’t believe PDABs will lower premiums or out-of-pocket costs. This is bureaucracy over care.![]()
![]()
Governor Spanberger’s amendments sought to slow the riskiest elements. When the legislature declined to take them up, she made the right choice for Virginia patients.![]()
![]()
We cannot gamble with lives in the name of affordability. There are better paths: lowering out-of-pocket costs directly, reforming PBM practices, and protecting safety-net programs.![]()
![]()
Thank you again, Governor Spanberger, for vetoing this bill and putting patients first.![]()
![]()
Let this be a message to other states considering PDABs: Patient access is not negotiable.![]()
![]()
Read the full op-ed here: heal.tigerlilyfoundation.org/wp-content/uploads/2026/02/RTD-Virginias-affordability-board-could-m...![]()
![]()
#patientaccess #PDAB #Virginia #HealthcarePolicy #tigerlilyfoundation
This Clinical Trials Day, we’re highlighting voices like Jazmine’s that remind us how powerful education and awareness can be. 💜![]()
![]()
At Tigerlily Foundation, we are committed to helping more women understand clinical trials through community conversations, advocacy, educational events, and trusted resources that empower patients to make informed decisions about their care.![]()
![]()
Clinical trials help move research forward and create more opportunities for better outcomes, representation, and access for all.![]()
![]()
Together, we can continue encouraging women to learn, ask questions, and engage. 🌸![]()
![]()
#ClinicalTrialsDay #clinicaltrials
✨ ANGEL Empower Chat is Tomorrow! ✨![]()
![]()
Join us tomorrow evening for a meaningful conversation centered on healing, connection, and the power of storytelling. 💜![]()
![]()
We’re excited to welcome ANGEL Advocate and writer Amara Brown as the featured co-host for this month’s ANGEL Empower Chat: Healing Through Storytelling.![]()
![]()
Whether you are a survivor, thriver, supporter, advocate, or ally — this is a space where your voice matters, your experiences are valued, and community comes first.![]()
![]()
🗓 Tomorrow — Thursday, May 21, 2026![]()
⏰ 7:00–8:00 PM EST![]()
![]()
Come as you are. Leave empowered. You belong here. 💕![]()
![]()
🔗Register here: us02web.zoom.us/meeting/register/580SMV6QRKSf2kHb1YCxJg#/registration
Join Tigerlily Foundation for the 12th Annual Young Women’s Health Day on the Hill (YWHD), an important advocacy event focused on improving patient access to life-saving treatments and care. ![]()
![]()
This year’s event will highlight the Clinical Trial Modernization Act, the Safe Step Act, and the importance of ensuring patients can access the treatments they need without unnecessary barriers. ![]()
![]()
Hear from patient experts, advocacy leaders, and policy professionals about clinical trial access, financial support for patients, and the real impact of step therapy on care and outcomes. ![]()
![]()
📍 Rayburn House Office Building, Room 2044 ![]()
45 Independence Ave SW, Washington, DC ![]()
![]()
🗓 Wednesday, June 3, 2026 ![]()
⏰ 1:00–2:30 PM ET ![]()
(Doors Open at 12:30 PM ET) ![]()
![]()
Lunch will be provided. ![]()
![]()
RESERVE YOUR SPOT TODAY: ywhd2026.eventbrite.com ![]()
![]()
#accesscantwait